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Centers of expertise list

The aim of the Ministry of Health, Welfare, and Sport is for patients suffering from rare diseases to know which centres of expertise in Europe they can go to for diagnosis, multi-specialist and multidisciplinary care, paramedical support and treatment. Patients and healthcare professionals alike need to know where specific expertise is available. The list of centres of expertise is also a big step towards the provision of better, all-round care for patients with rare diseases.

Read more about our centers of expertise for rare diseases (Dutch only)

  • Academic Breast Cancer Center (B-3-9)
  • Academic Center Kidney & Hypertension (F-2-3)
  • Brain Tumor Center (B-3-8)
  • Center for Bronchopulmonary Dysplasia (D-6-11)
  • Center for Congenital bone marrow failure and leukemia predisposition syndromes (F-8-7)
  • Center for congenital heart diseases Erasmus MC Rotterdam (D-2-8)
  • Center for Familian and Hereditary Tumors (F-3-4)
  • Center for Genetic Eye Diseases Rotterdam (F-6-2)
  • Center for inherited cardiovascular diseases (D-2-3b)
  • Center for Lysosomal and Metabolic Diseases (A-1-5)
  • Center for Neuro-inflammatory disorders (A-3-3)
  • Center for pediatric laryngotracheal stenosis (A-5-7)
  • Center for Perinatal Psychiatry (E-7-9)
  • Center for PKU, urea cycle disorders and organic acidurias (A-1-7)
  • Center for pregnancy induced diseases (F-5-2)
  • Center for Rare Systemic Immune Disease (C-11-5)
  • Center for systemic allergic diseases (C-6-3) aanmelding voor ERN voor Mastocytose
  • Center of rare skin diseases (C-10-1)
  • Centre of expertise for Children with Autoimmune Diseases (C-11-4)
  • Centre of Expertise for Uveitis (F-6-1)
  • Centre of Oligodontia (A-4-2)
  • Dutch Craniofacial Center (D-1-2)
  • Dutch Porphyria Center (A-1-6)
  • ENCORE - Expertise Center for Neuro-developmental disorders (A-3-7)
  • Erasmus MC Bone Center (E-3-1)
  • Erasmus MC Center for Pancreatic Diseases (C-3-3)
  • Erasmus MC Cystic Fibrosis Center (D-6-12)
  • Erasmus MC Leprosy Center (E-8-8)
  • Erasmus MC Liver Center (F-2 C-5-2)
  • ErasmusMC Center for Congenital Hand and Upper Limb Malformations (D-1-3)
  • ErasmusMC centre for endocrine disorders (B-1-5)
  • Expert Center Prader Willi syndrome (D-5-8)
  • Expert Center Rare Growth Disorders (D-5-9)
  • Expert Center spinal disraphism Rotterdam (D-1-7)
  • Expertise center DSD (D-1-6)
  • Expertise center Erasmus MC Vascular Genetics (D-5-12)
  • Expertise center for rare types of thoracic oncology (F-9 D-6-8), before mesothelioma centre
  • Expertise Center Rare hemorrhagic disorders (=Hemophilia treatment center, child) (B-2-6)
  • Hemophilia treatment center (adult) (B-2-5)
  • Immunodeficiency center (C-6-2)
  • Interstitial Lung Disease Centre (D-6-6)
  • Leukemia and Stem cell transplantation center (B-2-10)
  • MS center (A-3-6)
  • Multiple myeloma treatment center (B-2-11)
  • Nasal, Paranasal, Ear and Skull base tumors workgroup (B-3-10)
  • NeMo, expert centre for Neuromuscular and Mitochondrial Diseases (A-1-8)
  • Neuromuscular Center Erasmus MC (A-3-5)
  • Paediatric Brain Tumour Center (B-3-7)
  • Pediatric Surgical Centre for Anatomical Congenital Malformations (C-1-4)
  • Pick Centrum (A-3-8)
  • Pompe Center (A-3-4)
  • Pulmonary hypertension center (D-6-5)
  • Rotterdam Head and Neck Tumor work group (B-3-12)
  • Rotterdam Ocular Melanoma Center (ROMC) (F-9-5)
  • Rotterdam Oesophageal and Gastric Cancer Working Group (C-3-4)
  • Sarcoidosis Centre ErasmusMC (D-6-7)
  • Sickle cell center, child (B-2-8)
  • Sickle cell center, adult (B-2-7)
  • Soft tissue sarcoma center (B-3-13)
  • Turner Syndrome Center (D-1-1)