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Research project

Biological Registry

Status: Ongoing project

The Immune Mediated Inflammatory Diseases (IMID) Registry is a collaboration between the departments of Rheumatology, Dermatology, Gastroenterology, Immunology and the Hospital Pharmacy. The registry is set up as a value-based healthcare initiative for patients with IMIDs, but we also monitor side-effects in an uniform way. The IMID Registry is a healthcare research project, which means that the outcomes of the study are directly implemented into daily practice, and not primarily meant to answer a scientific research question.

What we do

About our project

Value-based healthcare strives to deliver high quality of care against low costs. In advance to their appointment, patients are asked to fill out online questionnaires about outcomes that may be affected by their disease, such as fatigue or quality of life. These are called ‘patient reported outcomes’ (PROs). By embedding PROs into daily care, the healthcare provider gets an overview of the patients’ needs. Patient and physician can, based on disease outcomes and PROs, decide together which treatment fits best.

On a higher level, PROs for different inflammatory diseases or for patients using the same type of biological therapy can be compared. The goal of such a comparison is to seek for targets upon which healthcare can be improved.

Our research focus

Overarching PROs that are measured are fatigue, treatment satisfaction, self-reported side effects, quality of life and work participation. Two PhD projects are connected to the IMID Registry; one project on atopic eczema outcomes and one multicenter project about value-based healthcare pathways for inflammatory bowel disease.

Our team

Contact us: biologicals@erasmusmc.nl

 

A. Pasma, Phd

C.J. van der Woude, MD PhD

J.A.M. van Laar, MD PhD

D. Hijnen, MD PhD

P.H.P. de Jong, MD PhD

J.C. Brugma, PhD

P.H.M. van der Kuy, PhD