What we do
About our project
Background information
To optimize adolescents’ transfer to adult care, they need to be prepared in a transition period during which they acquire new knowledge and are taught self-management skills. It is currently unknown what the optimal program is for the transitional care of adolescents with inflammatory bowel disease or how to define whether a transition program is successful.
Overall aim
Our primary aim is to determine the predictive value of the Transition Test (TT, on IBD knowledge and self-efficacy) on outcome of transition.
The secondary aims are:
- To validate the TT as a measuring instrument for knowledge and self-management.
- To develop and validate a Transition Success Score (TSS) as a measuring instrument for the outcome of the transition process.
Research method
We will ask 120 patients, 16-18 years, to complete the TT at different timepoints and/or use already completed questionnaires. Two hundred questionnaires will be evaluated for internal consistency, internal/external validation and predictive validation.
To determine the predictive validation of the TSS the results of the knowledge questionnaire, a quality of life questionnaire and a self-efficacy questionnaire one year after transfer will be used.
After validation we will investigate the correlation between the knowledge questionnaire and successful outcome of transition.
Desirable outcome
We strive to develop (a) a validated Transition Success Score as a measuring instrument for the outcome of the transition process and (b) a validated IBD knowledge questionnaire as a measuring instrument for knowledge and self-management.
Publications
European Crohn's and Colitis Organisation Topical Review on Transitional Care in Inflammatory Bowel Disease.
Van Rheenen PF, Aloi M, Biron IA, Carlsen K, Cooney R, Cucchiara S, Cullen G, Escher JC, Kierkus J, Lindsay JO, Roma E, Russell RK, Sieczkowska-Golub J, Harbord M. (2017). J Crohns Colitis. 2017 Sep 1;11(9):1032-1038.
Transition from paediatric to adult care: management of adolescents with inflammatory bowel disease.
Van den Brink G, van der Woude CJ, de Ridder L, van Gaalen MA, J C Escher. (2016). 01 Jan 2016, 160:D578
Transition from pediatric to adult health care in inflammatory.
Escher JC. (2009). Dig Dis. 2009;27(3):382-6.
Self-efficacy in adolescents with inflammatory bowel disease: a pilot study of the "IBD-yourself", a disease-specific questionnaire.
Zijlstra M, De Bie C, Breij L, van Pieterson M, van Staa A, de Ridder L, van der Woude J, Escher J. (2013). J Crohns Colitis. 2013 Oct;7(9):e375-85.
