What we do
About our project
Parenteral nutrition treatment provided by multidisciplinary teams has tremendously improved survival rates of children with intestinal failure and decreased the complication rates. Therefore, new challenges become apparent, concerning the survivors’ cognitive development, social-emotional aspects and parent-child relationship.
Aims of the study
The aims of this study are to assess parent-child attachment and interaction in a cohort of children known with intestinal failure and (a history of) home parenteral nutrition dependence, and to assess these children’s cognitive development and social-emotional functioning.
With the use of age-specific psychological questionnaires, interviews and observations we will assess aspects of parent-child attachment and interaction, cognitive development, and social-emotional functioning.
We wish to inventory how children with intestinal failure and how their parents are doing psychologically. We want to find out how to implement early interventions and how to offer guidance to the parents and children, so as to prevent cognitive and psychosocial problems later in life.
Funds & Grants
- Sporten voor Sophia - Vrienden van het Sophia
- Merel Verloop, MSc, psychologist
- Lotte Vlug, MD, PhD student
- Jeroen Legerstee, MSc, PhD, psychologist, post-doc researcher
- Barbara de Koning, MD, PhD, pediatric gastroenterologist
- René Wijnen, MD, PhD, pediatric surgeon, head of department of Pediatric Surgery
- Edmond Rings, MD, PhD, pediatric gastroenterologist, head of department of Pediatrics
- The Intestinal Failure team