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research-project
Research project

Intercultural dementia diagnostics and care (TULIPA)

The TULIPA-study team is composed of Dr. Janne Papma, Sanne Franzen, Yuled Kalkisim, Dr. Esther van den Berg and a team of trained interpreters.

What we do

About our project

The number of dementia patients among culturally and linguistically diverse (CALD) populations in the Netherlands will increase drastically over the next decades. Differences in language, culture, and education, as well as a lack of cross-cultural diagnostic assessment and treatment tools, hamper dementia diagnosis and care in CALD patients. Adequate support for caregivers and patients with a diverse background is lacking in the post-diagnostic phase.

What is the aim?

The first goal of this study is to develop a cross-cultural, in-depth cognitive testing protocol, to improve dementia diagnostics in CALD patients in the memory clinic. This part of the project is a collaboration between multicultural memory clinics across the Netherlands, as well as other partners, such as Pharos and SPIOR. Our second goal is to improve the quality of life (QOL) and caregiver strain in CALD dementia patients and caregivers, by means of personalized therapy: Solution Focused Brief Therapy (SFBT). Lastly, we will provide healthy CALD people with education about dementia and aging.

How do we perform this research?

Our research combines qualitative and quantitative research  methods. To reach our first aim, we reviewed the existing literature, organized focus groups and we will perform diagnostic accuracy analyses for the neuropsychological tests. The intervention study is a randomized controlled trial, in which patients and their caregivers will be visited at their home by a solution-focused therapist a number of times.

What is the desirable outcome?

Our aim is to diagnose all of our patients in a valid, reliable and timely manner, irrespective of the cultural, educational or linguistic background of the patient. With our RCT, we hope to provide patients and their families with tools that will help them in the phase right after the diagnosis.

TULIPA

Funds & Grants

ZonMw Memorabel #733050834

Collaborations

Geriatric Medicine

Neurology

Outside Erasmus MC

Multicultural memory clinics across the Netherlands

Alzheimer Nederland

Pharos

Erasmus Universiteit Rotterdam’

Hogeschool Rotterdam

SPIOR

Stichting Voorlichters Gezondheid

Publications

  • Goudsmit, M., van Campen, J., Schilt, T., Hinnen, C., Franzen, S. & Schmand, B. (2018) One size does not fit all: comparative diagnostic accuracy of the Rowland Universal Dementia Assessment Scale and the Mini Mental State Examination in a very low educated multicultural memory clinic population. Dementia and Geriatric Cognitive Disorders Extra, 8(2), pp. 290-305.
  • Franzen, S., van den Berg. E. & Papma, J.M. (2018). Neuropsychologische diagnostiek bij niet-Westerse migranten [Neuropsychological diagnostics with non-Western immigrants]. Tijdschrift voor Neuropsychologie, 13(1), pp. 59-67.
  • Goudsmit, M., van Campen, J.P.C.M., Franzen, S., van den Berg, E., Schilt, T. & Schmand, B. (2020) Dementia detection with a combination of informant-based and performance-based measures in low-educated and illiterate elderly migrants. The Clinical Neuropsychologist. Advance online publication, doi:10.1080/13854046.2020.1711967.
  • Franzen, S., van den Berg, E., Goudsmit, M., Jurgens, C.K., van de Wiel, L., Kalkisim, Y., Uysal-Bozkir, Ö., Ayhan, Y., Nielsen, T.R., & Papma, J.M. (2020) A systematic review of neuropsychological tests for the assessment of dementia in non-Western, low-educated or illiterate populations. JINS:  Journal of the International Neuropsychological Society, 26(3), pp. 331-351, doi:10.1017/S1355617719000894.
  • Franzen, S., van den Berg, E., Kalkisim, Y., van de Wiel, L., Harkes, M., van Bruchem-Visser, R.L., de Jong, F.J., Jiskoot, L.C., & Papma, J.M. (2019) Assessment of visual association memory in low-educated, non-Western immigrants with the modified Visual Association Test. Dementia and Geriatric Cognitive Disorders, 47(4-6), pp. 345-354, doi: 10.1159/000501151.
 

Our team

Contact us via email

Sanne Franzen

Janne Papma 

Esther van den Berg